Let me entertain me

Today is Remicade Infusion Day. (For those new to my blog, I get a 2.5-3 hour Remicade infusion every 8 weeks to keep my Crohn’s Disease in check.) While I would love to stop getting them, I am grateful that I have good insurance which covers these expensive infusions, and that I have a job that allows me to adjust my work schedule so I have the day off to go to infusions every 8 weeks without negatively impacting my vacation and sick time accruals.

All things considered, it’s a relatively pleasant experience, for a medical treatment. Aside from having to spend a few hours here every other month and get an IV placed in my arm (and also having the adhesive tape removed from my hairy arm – ouch!) the nurses here are usually pretty friendly and pleasant, the other people seem to respect that we’re all here together in  a small room getting treatments and behave accordingly (no outrageous behaviour or loud or obnoxious conversations) and I can easily entertain myself with all my electronic devices, since they have free wi-fi and plenty of power outlets. On occasion, there’s even a handsome fellow here to secretly ogle (but not today.)

I have become quite adept at withdrawing and “disappearing” in a room full of people for 3 hours while my infusion drips,  thanks to my portable technology.  While here, I usually grab the chair in the corner, if it’s available (so my back is against the wall, which allows for the most privacy for my laptop screen) where I read (and reply to) blogs, answer any sitting personal e-mails, and monitor my work e-mails on my laptop. I also like listening to music or podcasts on my iPhone or through iTunes on either device, to block out other people and conversations.  Today, I am using my new Bluetooth ear pods, which have replaced my corded earphones (I love them) and  I’m listening to EW Live, which is streaming on Sirius XM radio app. I usually listen to this show in the car in the morning on the way to work, (if the Fresh Air show with Terry Gross on “NPR Now” is a repeat) because they chat about pop culture, movies and TV shows, which is a welcome change from the depressing news on other news talk stations. I also brought my iPad in case I want to read digital comics, and I could watch TV shows or movies here on any of my devices if I really wanted to (but I never do.)

I really don’t know how people got through these types of things on a regular basis without so much entertainment and distraction at their finger tips.  I see people at every infusion appointment who just sit here and stare off into space during their infusion. Wouldn’t you at least bring a book or magazine to pass the time?

Having a chronic illness sure sucks, but having the Technology to make it more bearable is wonderful, isn’t it?


8 thoughts on “Let me entertain me

  1. Technology is awesome. The last time I had jury duty, I brought along my Amazon Fire HD tablet and streamed Arrow episodes I downloaded from Amazon from my library.


  2. If you have to be there, best to make the most of it. Good on ya’. On nearly every occasion when I have to chose a seat in a public place, I want my back to the wall! Corners are the best.


  3. You might try clipping the hair (don’t shave it) down close to the skin in the area you get your IV’s. Another option (which, if you will be doing this for the rest of your life, you may prefer) is an implanted port, such as a port-a-cath (if you google that, also try it without the hypens, as it is sometimes (mis)spelled that way), if your insurance will pay for it. Some patients complain of the pain when the needle is inserted, and I’ve heard that using Orajel on the skin over the port 10-15 minutes prior helps. There is also a prescription numbing agent called EMLA Cream, again, if your insurance will pay for it, that you can ask your doctor about. And some people have no problem with the needle at all. YMMV. I’m glad the Remicade helps you!


  4. Technology is indeed a marvel. I had to bring my Subaru into the dealership yesterday for an unexpected appointment due to some car problems. I managed to pass the time staying “plugged in” with their free wifi. Stay well.


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